Saturday, January 10, 2015

Making stuff is fun


We're trying to break in all our nifty Christmas presents before we head out for a three week trip to Florida next week. It's not a small job as we have such a generous extended family. This sewing machine was given to Mr. Isaac by Grandma W and it's a very good fit. He's been making these stuffed animals for others by hand and we wanted to see how easy it would be to make one with modern assistance. I had a shirt I didn't need anymore, so voila!

The stuffed animal Isaac made me for Christmas was easily my favorite gift (and there were so many great gifts!) and it will always be a treasure. It's sitting there just in front of the lamp/cowboy hat combo. Also, my night stand is never this clean.
I had to take a picture because I like it this way so much.

Isaac's focus can be impressive for a 6 year old. He's the kind of personality that is either acting like he's a very enthusiastic 45 year-old or throwing a toddler-style fit in indignation over nothing. There isn't much in between, but the fit-throwing mode is starting to show up less and less. (He gets it from me, so I question whether it will ever disappear entirely...) We spent over an hour reading the sewing machine's warnings, learning how to plug everything in, filling the bobbin, threading the machine, and "drawing" some shapes on construction paper. The very first warning said not to treat the machine as a toy and he requested I read that part in both English and French. Little boys are funny.

FangFang isn't really making things yet, although she likes to scribble tiny circles on her pieces of paper and then shout, "DONE!" when the boys are doing school.

She's pretty good at making faces, though.




This is how we made it through our local scuba dive club meeting. The speaker wrote a book about wreck dives in the Northwest we'd love to use for a bit of exploring once the kids are in college or we find a babysitter. Whichever comes first!

Tuesday, January 06, 2015

Diagnosis and surgery scheduled.

What a day.

Short story: Primrose is scheduled for a relatively minor spinal surgery on February 11th. It's overnight in the hospital and the surgery itself is less than an hour.

We ended up with two appointments today. One was a surprise reschedule with the neurosurgeon who had already rescheduled several times and the other was with our new pediatrician for a regular old inflamed set of lymph nodes.
She is pretending to tickle you.
To tell you the truth, I find medical appointments ridiculously tiring and by the end of the day I feel about 90 years old. It's not just the conversations and the procedures, it's dragging the kids through looming medical facilities and labyrinths made almost entirely of elevators, blind corridors and germs. You know how a computer will get slowed down and heated up by processes running needlessly in the background? That's me, and I probably can't even handle the newest version of anything right now. (Juicing, watching broadcast TV, listening to Katy Perry... none of it will fit on my current system.)
Because everyone needs an owl backpack, doggie purse, magnatiles and thirteen billion Pokemon cards
when they're getting ready to head to the grocery store, KWIM?

Randall Children's Hospital really isn't all that bad. There are neat painted installations (all with a bird theme) and warm lovely pieces of art everywhere. The kids noticed that almost all the art had animals hidden in it, and they approved. There was a truly inviting play garden we were sorry to pass by twice because J had to get to the office when we finished the surgeon's appointment.

Primrose starts to whimper as soon as we get into the bowels of an office. She has been to a lot of these rodeos in her short life. If anyone gloves up, she is in full-on ugly-cry mode. The neurosurgeon (who just ran for senate but fortunately for us, lost) was very brisk and matter-of-fact. I may have fallen in love, as she had strong clear advice and showed us the MRI images to back it up. There was no ambiguity. Our girl has her spinal cord tethered near the end of her spine, instead of floating freely as it should. As she grows, it would cause problems with her legs, continence, and other frightening neurological junk.
We have to keep her in top condition. Otherwise, who will keep up on the stuffed-spider feeding schedule around here?

Oh look, click here for a link with better medical info than I can give.

So we left with a surgery date and the reassurance that in our daughter's case this isn't a judgment call. It's clearly surgical, and leaving it would likely result in scary damage when she starts growing taller. The best part of the appointment was when I asked about re-tethering (I read there is a 40% chance of that) and the Doc just about laughed. She says with this kind of tether, the likelihood is more like 1 or 2% and she has actually almost never seen it happen. Reassurance: Check!
I believe they are sharing M&M's here. And by sharing, I mean he's giving her his M&Ms.

The second appointment was actually way less fun even though it was mundane, as far as the kids are concerned. FangFang had to get three more vaccines, and we discovered that the GP from our initial homecoming appointments did not properly test for several versions of Hepatitis and failed to include measles or chicken pox in her orders. Lucky for our girl, we have wised up on the horror of pediatric blood draws and requested that they be combined with the sedation for the spinal surgery. Look at us learn to work the system.
This diagnosis is almost as good as Christmas...

Well, almost... 

Christmas was pretty rad.
Primrose passed out in the car on the way home, and in just a little while we have to wake her from her nap to head out for Isaac's cello class. Somehow we snuck in spelling, reading, and math. I managed to call the studio of one of our teachers who is out with the flu while the kids were magically quiet in the car downtown. (It was kind of weird, really, I expected to have to stand on the sidewalk with my phone while they were locked in their soundproof cage the car.) We were supposed to do Chinese and writing, but it just ain't going to happen today. If they're lucky, we'll play a Neil Gaiman audiobook in the car.

Altogether, I'd say it's a win. Where's my wine?

Saturday, November 22, 2014

Through Hail and Back: A Dam Trip

I had to tell you about today. No work, no chores, no school. 
We did a lot in school this week in addition to a surprise sleepover at Grandma's for the boys.
By today we were a bit stir crazy!
 We slept in, got breakfast out and went for a day trip. Out of our three options: Hug Point on the coast, Mt. Hood, or the Bonneville Dam in the gorge east of Portland, we chose the last. The kids’ winter clothes are not yet completely in order and both Mt. Hood and the coast were predicted to be windy and cold, so we decided to go with the ol' dam trip.   

Hello dam! From this angle you look like a dam prison.
This dam has two powerhouses; one on the Washington and one on the Oregon side of the mighty Columbia River. We went with the Washington side of the set-up because we’ve already done the Oregon side and it’s closed for renovation anyway. Also, Washington does NOT have a gift shop. This is a championship-level plus for us because the boys could spend seven weeks on average in even the tiniest gift shop.
Near the dam entrance, facing the direction of the storm.
We chose the old highway leading along the North side of the gorge from Vancouver on past Camas. It is an even more beautiful drive than my beloved Highway 84, which we drive many times a year. Today the weather made it spectacular. The skies were displaying lightning (a rare treat in our neck of the woods), spitting down hail, raining fat drops so hard we couldn’t have a conversation and blowing leaves in panicked circles in our path. The road at points was covered in a frozen slush, but there were almost always ruts with good traction mid-lane. Winter is so rare in Portland that it was fun to see a glimpse of it today. At one point Toby asked, "Is this a storm?" and I realized it's kind of sad he really doesn't have much experience with truly stormy weather. It generally just rains in a most matter of fact manner without much drama in Portland.

Here’s the truth: the kids were not at all excited about the dam at first. Usually they would be, but I think they had set their hearts on the coast. Instead they were whiney and complainy and asking how long it would take to get there-y. They can be really annoying in the small space of the car. Do NOT, for example, under any circumstances hum Bizet's Carmen. They will rock it Beeker-style until your ears bleed. 



Once we started to explore the place it got a bit better. There are some things for kids to touch and move in the visitor’s center, and a movie about Lampreys which both boys liked. They really loved the fish observation room and spent time on the interactive displays there. We were about to wrap up the visit when I noticed a sign about tours and realized if we booked it we would be right on time for one. We hurried the kids (“C’mon, we don’t want to miss the dam tour!!”) and made it to the ranger’s desk just in time. We were her only takers and she was an excellent ombudsman.

The tour is where it’s at, people. If you go to the dam in the winter, which I highly recommend because I like having places all to myself, do not skip the tour.
After some initial grumping, Isaac turned on his chatty self and asked his customary 11,000 questions. 
After that even the kids admitted they loved the trip. We went to Charburger, a longstanding local dive with a gorgeous view of the Bridge of the Gods, and then drove back home with a happy tired trio.
The tour takes you next to and below a real working generator! 

We were amazed that the deep thrumming was not the turbines
but rather the water rushing around and through the dam structure.
The tour guide told the kids it was enough water to fill a three bedroom house every second. 

In the future, I think we could make much more of our dam trips. We could pre-load some study (homeschoolers call them unit studies) about infrastructures, the mission and history of the Army Corps of Engineers, hydroelectric power, magnets (and exactly how the turning turbines create energy for a grid), fisheries, and "how terrorism threat levels make the guard have to open your trunk where you really hope all those falling books and coats and strollers and diapers will not injure him too badly". (That's a popular one with the unschoolers. I kid, unschoolers!)

As it was we came home and watched an episode of Dirty Jobs where Mike Rowe crawls all around inside a turbine, replacing bolts and lubricants and recovering fish tracking tags from waste pits and using the word "poo" a lot. I’d say we could count it as a school day if we needed to count such things.

Stuff that happened on the way home:
The boy finished Gregor the Overlander book 1.
He loves it and often busts out giggling in random, inappropriate places.
We have to remind him to close his book to walk.
Quintessential Isaac.

Because tomorrow is Sunday...

FangFang continues to adore and emulate her brothers. She wants to do everything they are doing. If one of them asks me a question in the car, they are interrupted by "MOM!" and a line of toddler babble ending with a big fat question mark. Sometimes there are adorable hand gestures and head tilts. She did this to the dam tour guide, patting her on the dark-khaki leg. 


Another habit this child has developed in her third month as an American is to bid adieu to everyone as she leaves a restaurant, grocery store, library. She shouts BYE! and waves at each one with the easy practiced enthusiasm of a miniature beauty queen. Sometimes that's hard to do because she is also carrying a large Calvin & Hobbes book like she has noticed Toby is wont to do. She is my daughter, but I am also her groupie. I get to associate with this little celebrity, and it's a very sweet gig. 

She even reads me bedtime stories before folding herself in half just for fun.


Sunday, November 09, 2014

Night-night

I realized yesterday that almost all the richest parts of our family life center around evenings. It used to just be true of J and I individually, but it has bled over into the whole circus.

We are homeschoolers so preferring nights could very well mean I'm doing something wrong in directing our school days, but I'm strangely okay with that. Some of the homeschoolers I read about seem to have some remarkable, deeply spiritual experiences with their incredibly attuned children daily. School for us lately has been a lot more productive but also much more practical. We complete tasks, we get through our curriculum, and the boys' brains are worn out by the end of the day. Sometimes they say or do neat stuff, but they do that despite me and any particular intellectual fantasias playing out in our day. In this season of our lives checking off the boxes and enjoying part of a portion of some of it is a win.
Primrose's daily checklist includes destroying the living room.
I don't want to intimidate all the average kids, but as you can see she's kind of a prodigy in that area.
About 2/3rds of the way through his schooling checklist, Toby takes a break with his pit crew. 
This week I've been playing the opera Der Fledermaus, which is apparently hilarious and entertaining. It's not visible to me from under the stage, but the audience is laughing and Isaac keeps quoting things from it today. I let him come last night with my mom, and he ate it up. He always likes to come to my concerts, and has impressive perseverance for a six year old. My goal is that when he's an adult he can be elitist and picky about art in the exact way the brothers were on Frasier. Kidding.

During each of the two intermissions, he thoroughly explored the Keller.
His favorite was the top floor because it was so quiet up there,
and it was fun to look down on the spinning event floodlights.
Partway through the third act, I became certain that Isaac was restless and bored. I was thinking of all the things I should have done: played him recordings, read him the synopsis, watched parts on YouTube. If only I had done better to prepare him maybe he would like it. He's only six, I chided myself. It's way past his bedtime. As soon as I made my way up to him in the glacial flow of exiting patrons after the final curtain, I knew at a glance I was worrying needlessly (sense a theme in this blog?). He had connected with the whole performance. In fact he was so excited about the whole thing I don't think he took a breath all the way home. He kept the program because, as he pointed out incredulously, "It has a whole bunch of other things I can go to!"
So happy with his lovely date!
I took another gig next week. It's stretching our gig-per-month tolerances but I've never been asked to play with this little orchestra before and they're playing a piece I've only ever played one other time. It's a standard audition piece (Mendelssohn's Midsummer Night's Dream) and the other time I played it was very rewarding. We practice little snippets of audition pieces for years (years within years!), and after deconstructing them to a molecular level it's nice to finally deploy them in their native environment every once in a while. I'm hoping that leaving a crockpot out and being sure to give J some time to himself on the few nights available will make up for me being out more than usual. Plus, Thanksgiving is nearly here. Phew!

Giving up these extra evenings is both selfish and sacrificial. Playing with people has a social component I miss as a homeschooling mom (nobody makes poop jokes! Unless maybe it's a brass rehearsal...). There's often an artistic benefit, which is of deep personal value to me on so many levels. I want my kids to see their parents living rich lives and maintaining excellence in both personal and professional ways. The money is helpful, and while I'm being practical I have to admit I also hate to say no to gigs because they stop calling. Nobody likes that.



We have most of our fun as a family at night, so I do hate to miss any. We go for walks with flashlights, we retreat each to our own corners, we have long tickle fights, we watch weird Chinese TV shows in Mandarin for practice and fun, we used to read long books but I've slacked off with that because SOME one went and brought a toddler to the party. Both J and I have strong tendencies toward introversion and evenings in our bubble full of small proprietary Wards are easily our favorite times. Excited as I always am to play, I think it's a sign of a good life that deciding whether to take on more work involves complicated checks and balances. G'night!

Thursday, November 06, 2014

Guess what I do NOT want to practice?!

Answer: Waiting for answers. Or pretty much waiting for anything. I'm not good at waiting for anything and I'd like to stay exactly this way, thank you very much.

I'm sorry for the radio silence, but I was going through a mood in which I wasn't sure what to post.

Good things have happened: Halloween, new homeschool procedures that reduced my yelling by fully 84%, nice gigs with people I like, a brunch with a friend we made in China working for Holt.

Holt brunch!
There were 6 or 7 families with children from China there.
The kids all had a great time!
I like to start with a list of the good because then I don't feel like such a whining wussy writing about some of the rest.

The MRI results appear to be a bit murky. The doc at first said they were totally normal, but it took her a few days to get to us and by then I had googled several of the findings. It seemed to me to indicate possible surgery-requiring things (tethered cord, maybe a rare syndrome) and I asked her a bunch of questions about it. After letting me know she was all offended about that and nobody in her career had such questions, she apparently did ask somebody else about it and changed her recommendation to have us see a neurosurgeon. It turns out one possibility is that Primrose might need a spine surgery. Another is that she could need monitoring for masses that can become cancerous. A third is that none of those things are true and we didn't see aaaanything.

Best friends came to visit and fun was had by all.
My boys would like this kid right here to live next door, please.
Me too, except we can't wrench them away from stupid snobby coffee-smelling Seattle.
That doc was fantastic in person, and it's entirely possible we simply misunderstood each other. Still, the way it went down was oddly discouraging and a little frightening. If I hadn't pushed, then we would not know she needs a specialist's opinion. If we miss a tethered cord now, it can cause permanent neurological damage later.

I think I would be as intense an advocate for my boys if there were any question about medical things. I think I would... but this feels different. When we agreed to adopt our girl, I think we agreed to be fiercely involved with figuring out whatever she needs. One of the reasons we were allowed to adopt her is that our country has state of the art health care and trained doctors at the ready. It is a lot of pressure, and I'm disappointed that this first experience in mapping out her health involved me being a squeaky wheel already. I guess that's the way things are with a lot of modern medicine. I was hoping to have her all scanned, measured and tested, and then know what's going on in that cute little body once and for all. To passively receive the information from a team of super-with-it doctors... sigh.
This makes Toby look like that Gulliver visiting a lilliputian.
In reality, he visited a spinning toy on the playground and then went to lay down for a while.
As he tends to do...

Some of the things she might have are linked with genetic components and risk for them is inherited. I found a forum for one of the potential issues and it was full of moms who discovered they had this syndrome for the first time when it was diagnosed in their children. Others had their children tested in utero and were primed to check out their babies when they were born. We don't have the advantage of that kind of preparation, of knowing a single thing about what we're dealing with beyond what we've read on the internet. Both Jonathan and I grew up with medical parents (his dad is a fabulous Oncologist and my mom had a career as an OR specialty nurse), and neither of us are all that content with trusting the internet for these answers.
She has a monkey hat and she's not afraid to use it.
Notice she's set herself up here with a Pillow Pet, a book and her fashion accessories.
All a girl could want.
She's a happy kid. Happy is one of her current favorite English words (along with "quiet", "goggles", "apple" "food" and "bye") and she likes to wake up saying "HAPpy HAP!py HAP!!!pyyyyy", actually. She's a ridiculously awesome kid and is suffering not one iota. We just want to be sure to keep it that way and it's weighing heavy on me until we get some clear answers.


Tuesday, October 21, 2014

MR... I am not able.

I've always thought OHSU was pretty, but approaching it today it looked overwhelming.
The feeling was remarkably similar to audition anxiety without the excitement or pretty music.
Today was awful. FangFang was a champ and everything went well. She was sedated with gas initially and didn’t even have to have a needle stick while conscious, which was a big help.

But it was still awful.
A kid in the next room started crying one second before this picture.
This is her "Um, no." face.

As soon as her body stopped squirming and her brief crying silenced under the little teardrop-shaped mask, I was told to come back in an hour. I walked out into the hallway and realized I was about to completely lose control of my emotions. It felt like nausea of the psyche. It sucked.


I headed for a stairwell and walked away from any voices. I wasn’t aware where I was in the massive OHSU industrial complex or what direction I took, so I was thankful I ended up taking the most direct route possible out of the building. The perfect fall Portland air felt like a solid object and I could not suck enough in. I was actually worried somebody would see or hear me freaking out and make me submit to a “what the haystack is your problem” exam. I remember worrying how much that might add toward our deductible and whether it would make me late for her waking up.

Breathing in and out seemed to do the trick, and my moment of panicked humiliation eventually ended.

I think two things caused it. One, and this may be a bit of a fruit-loop idea, but it was as if my body was convinced it had watched Primrose die. Like if you are watching some crappy movie with too much hand-held camera and it makes you motion-sick even though you know it’s not real, or if the sight of blood makes you faint even though you aren’t frightened. The thought of losing her was so terrifying, I know now there is nothing left for me to hold back in terms of bonding, clinging, investing, wrapping up in her. 

Two, I am like a huge outdated left-on video-phone walking through that stupid place filling up with images until I can no longer function. The people I see stick with me. There was a family there. The mom was missing a large part of her face (cancer?) and she and another daughter were there with a young son who was waking from sedation. In the waiting area I overheard as another mom was told the MRI of her daughter’s brain went well and they would soon have more information about her cancer. This second part, the continually shocked over-sensitive part, I am ashamed of. It proves that I allow myself to live in denial that these things overtake people’s lives on a regular basis. Why do I get to assume that luxury? I am sorry about that.


Imagining any of those things happening to our family points out the limits of my faith as surely as a flashlight in a cavern. (A weak flashlight, a cramped cavern.) And worse, after today I confess that I truly, strongly hope that those limits are not forced to expand despite all those other times I nobly prayed they would. People are tested, broken, ground into dust. So many we’ve known still display their faith in a God of grace. Thank God for that, and for them.


We should have results from the MRI tomorrow, and then I need to sign the consents to send them along to the specialist in Cincinnati. Those are the kind of tasks I can handle. 

Spleeeeet!

Isaac has been dancing a lot lately. It is spectacular.
We are humming along, rolling, tripping, falling into rhythms. Every day ends with me surprised how much we stuffed into it, and a list of things leftover nagging me to stay up to the wee hours getting a few things done and procrastinating many more.

Primrose and Isaac, the personality twins, wake up at about the same time in the morning. Sometimes Toby joins them and he’s tall enough to lift her out of her crib while J and I get ready and start breakfast. She wakes up so happy it's ridiculous. It's a Rockwell painting all up in here for the first 5 or maybe 6 minutes of every day.

Footed pajamas, eldest brother reading. A wholesome start to any day.
Tomorrow we have her MRI and (hopefully last for a while) blood draw. She’ll be sedated and it’s supposed to take about four hours from check-in to release. I'm trying to keep my hands open and unclenched, to follow wherever God's going with this thing. Being grateful and also worried is a sour mix, hard to sustain. 

She did this "All Socks Are My Puppets (TM)" move in the front row of the Eugene Symphony kid's concert.
It was entertaining. I especially liked when she clapped enthusiastically for us with one ensocked hand.

I am looking forward to the day after the results from the tests, the day everything relaxes and goes back to getting back at it. I painted my nails (almost never do the fingernails because it feels weird when I play) all sparkly tonight and then realized that's what I had done the day before she met us at the Children's Welfare Institute. She may be doomed to go through life with a strange aversion to tacky nail polish. I am throwing away the bottle if it's a bad day. 

Still a fan of balloons. Well played, spaghetti factory balloon animal guy!
The last few weeks haven't been pretty. I had a disgusting case of pink eye which led to an infected cornea. I missed a symphony concert. It was a bummer. It feels better now, but I think it takes me longer lately to get back into our schedule whenever something pushes us off it. It's either a 3-kid thing or a 40-something thing. I think it's high time I re-read Getting Things Done or Letting Things Go or Drinking Wine for Fun and Profit.

Some folks on a homeschooling forum I read were responding to a mom asking about adoption from China and I found reading the thread depressing. One of the respondents in particular warned her to be wary of any blog saying everything is "wonderful" in their family after adoption. I know we are still so new to this, and we truly were prepared for harder things, but it stung a bit to feel like our experience still doesn't count in the spectrum. I hope the person who posted the thread wasn't discouraged. 
Isaac has figured out how to climb poles over concrete.
I told him not to climb higher than my head.
Our insurance company doesn't read this blog thing, right?
Thankfully one of her super-powers is not massive upper body strength.
We are not making this up, exaggerating or leaving out a bunch of bad stuff, though part of me still waits for the other shoe to drop. Maybe there is a hidden medical need. Maybe she'll display Radical Attachment Disorder or she'll be a terror and hate us when she's grown. Maybe she'll hate adoption and fight against people being allowed to do it. Maybe she'll wear fringed jeans jackets and play electric piccolo in a new country band (sorry, that was harsh but I have to go there, after all these are our darkest fears. Spleeeee-eeeeeet!).

Right now, from my blissfully unqualified position, I believe it will not matter if any or all of those things happen. Crap, I am tearing up realizing and writing this. Don't worry- the tears are no longer contagious. It's so sappy. I have drunk all the koolaids because this whole thing including the years of waiting and the financial sacrifice is just so worth it. 'Worth it' isn't even in the right universe. 


So tomorrow we tackle the MRI. I'm just going with banking on her forgetting the whole thing.

MWAH!